It is an honor that you are here, Thank you!

Tuesday, April 20, 2010

I would like to know...

Good Evening all,

I was just pondering the thought, as to how many people became organ donors after reading Eva's blog and saw her documentary?  It would be interesting to see what the numbers look like now.  If anyone knows the answer, please feel free to enlighten me, about what your country's Organ Donation count is at.  How many peeple in your country are willing to give their body to someone else who needs it.

The question often brought to my attention is whether or not i am an organ donor.  And the answer to that is simple one word "YES".  I have even asked my doctor if my donated lungs, can then be donated again, should I move on to a better place form a car accident or something like that.  I still hve not gotten a response yet.

Nor have I heard from my donor family.  i really want to hear from them.  I want to learn more about my donor than I can possible imagine.  What did they do for fun?  I want to know what they thought of my card, and the fact that I brought their loved one to Vancouver with me.  Whoever gave me these lungs, has tobe very strong, and have a strong family.  Otherwise I wouldn't be here today.

I live everyday for me.  I don't take anythign fro granted, I try to give back as best I can.  I try to educate people on CF, but in small town, it's hard to get sponsore for events that try to raise money for a good cause.  If it weren't for all those donations to the CF Foundation, it wouldn't have given me the chance to live to this age.  At almost 31, I can't imagine what it would be like to not be here.

When I was sick, that's all I could thin about.  When I was going  to go, how much longer I would be here, and most importantly who is going to take care of my family, when I am not around to hold them close when they hurt. That was my job, and is my job.  But who will do it, when I am gone.

I will love long, but not forever.  The chances of living forever, doesn't exist.  I could have the lungs of a 50 year old woman for all i know.  But i am thinking not.  I am too excited and energetic to leave this world without making a difference.  Eva has her documentary, now it's my turn to make a splash.  Eva, this one's for you.

I am writing a book as you all may have seen.  and it's going okay.  Not as productive as I thought, but going.  i will keep you all posted as to my adventures in writing.  Wish me luck.

Love always
Alison

Eva's Goodbye! We miss you :(

Haager's again, #4 I think...

Everyone,

As you know, I am keeping everyone posted on my friend Emily and her battle right now.  She is a warrior and I intend on keeping everyone up to date on her condition.  she is a great source of knowledge and a wonderful advocate for CF in California.  She is involved with the "Pipeline for a Cure" campaign that takes place in Hawaii, if i am not mistaken.

Evey year she has been there in support of pro surfers giving CF patients, a lesson in surfing, and catching that wave of freedom. 


To learn more about Emily, i encourage you to check out her video on the Pipeline page.  You can't miss it, it's the second photo on the left hand side.  

http://www.pipelinetoacure.com/2010/video-02.php 

Please learn more about Emily, as she is just like me.  She is waiting for transplant, or to be able to have the assessment done.

She needs our love and faith right now.  I know we all have a lot to share, so let's give her some.

Check it out, I promise you won't regret it.  It's like the Great Strides on land, but for surfers.  okay maybe not, but it's really amazing.  Emily is an amazing woman, and she needs our prayers, keep her close to your heart, as you do with me.  Pray that she will be surfing again soon, cause that's what she needs to be doing.

Thinking of Emily and her family.

Love from CANADA
Alison




Ups and Downs

Just a quick update tonight to let you know that Emily had a mostly great day. After being a big sleepyhead all day Sunday, Emily woke up today and was ready to go with physical therapy. Her bright smile as I entered the room this morning was better than a ray of sunshine. She greeted everyone with a warm smile today and did a lot of communicating by mouthing words. She wanted to know about everything having to do with her treatment- all the numbers that we watch- heart rate, blood pressure, O2 saturation, vent volumes, etc. She was tracking what was going on and was not going to miss a thing.


By mid morning, she was sitting in a chair and doing leg exercises with a physical therapist. She sat up a second time and continued to work on getting strong. A parade of doctors checked in on her today. The GI team removed one of the four drains connected to her abdomen. The incision from her surgery is healing nicely. Her kidneys are doing well, too. The lung infection continues to be the major concern. 

The white blood cell count was up, indicating that there may be an increase in infection somewhere, most likely the lungs. During respiratory therapy in the early evening, she had blood in her sputum. The doctors are watching it carefully, and it seems to have subsided. Periodic bleeding is not uncommon for someone with CF, but it is dangerous if it turns into a major bleed. Of course, we were a bit alarmed, given Emily's complicated and critical state in recent weeks. Tonight, though, there does not seem to be any more bleeding and her respiratory therapy is going well. Let's all wish Emily a good night's sleep and energy for tomorrow's hard work!


Diane