Everyone,
As you know, I am keeping everyone posted on my friend Emily and her battle right now. She is a warrior and I intend on keeping everyone up to date on her condition. she is a great source of knowledge and a wonderful advocate for CF in California. She is involved with the "Pipeline for a Cure" campaign that takes place in Hawaii, if i am not mistaken.
Evey year she has been there in support of pro surfers giving CF patients, a lesson in surfing, and catching that wave of freedom.
To learn more about Emily, i encourage you to check out her video on the Pipeline page. You can't miss it, it's the second photo on the left hand side.
http://www.pipelinetoacure.com/2010/video-02.php
Please learn more about Emily, as she is just like me. She is waiting for transplant, or to be able to have the assessment done.
http://www.pipelinetoacure.com/2010/video-02.php
Please learn more about Emily, as she is just like me. She is waiting for transplant, or to be able to have the assessment done.
She needs our love and faith right now. I know we all have a lot to share, so let's give her some.
Check it out, I promise you won't regret it. It's like the Great Strides on land, but for surfers. okay maybe not, but it's really amazing. Emily is an amazing woman, and she needs our prayers, keep her close to your heart, as you do with me. Pray that she will be surfing again soon, cause that's what she needs to be doing.
Check it out, I promise you won't regret it. It's like the Great Strides on land, but for surfers. okay maybe not, but it's really amazing. Emily is an amazing woman, and she needs our prayers, keep her close to your heart, as you do with me. Pray that she will be surfing again soon, cause that's what she needs to be doing.
Thinking of Emily and her family.
Love from CANADA
Alison
Ups and Downs
Just a quick update tonight to let you know that Emily had a mostly great day. After being a big sleepyhead all day Sunday, Emily woke up today and was ready to go with physical therapy. Her bright smile as I entered the room this morning was better than a ray of sunshine. She greeted everyone with a warm smile today and did a lot of communicating by mouthing words. She wanted to know about everything having to do with her treatment- all the numbers that we watch- heart rate, blood pressure, O2 saturation, vent volumes, etc. She was tracking what was going on and was not going to miss a thing.
By mid morning, she was sitting in a chair and doing leg exercises with a physical therapist. She sat up a second time and continued to work on getting strong. A parade of doctors checked in on her today. The GI team removed one of the four drains connected to her abdomen. The incision from her surgery is healing nicely. Her kidneys are doing well, too. The lung infection continues to be the major concern.
The white blood cell count was up, indicating that there may be an increase in infection somewhere, most likely the lungs. During respiratory therapy in the early evening, she had blood in her sputum. The doctors are watching it carefully, and it seems to have subsided. Periodic bleeding is not uncommon for someone with CF, but it is dangerous if it turns into a major bleed. Of course, we were a bit alarmed, given Emily's complicated and critical state in recent weeks. Tonight, though, there does not seem to be any more bleeding and her respiratory therapy is going well. Let's all wish Emily a good night's sleep and energy for tomorrow's hard work!
Diane
By mid morning, she was sitting in a chair and doing leg exercises with a physical therapist. She sat up a second time and continued to work on getting strong. A parade of doctors checked in on her today. The GI team removed one of the four drains connected to her abdomen. The incision from her surgery is healing nicely. Her kidneys are doing well, too. The lung infection continues to be the major concern.
The white blood cell count was up, indicating that there may be an increase in infection somewhere, most likely the lungs. During respiratory therapy in the early evening, she had blood in her sputum. The doctors are watching it carefully, and it seems to have subsided. Periodic bleeding is not uncommon for someone with CF, but it is dangerous if it turns into a major bleed. Of course, we were a bit alarmed, given Emily's complicated and critical state in recent weeks. Tonight, though, there does not seem to be any more bleeding and her respiratory therapy is going well. Let's all wish Emily a good night's sleep and energy for tomorrow's hard work!
Diane
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