Uncertainty and Crisis Management...
Posted Apr 26, 2010 6:24pm
Hello, All. Here we are, again, waiting and holding our breath to know exactly where we are. Yesterday was such a frightening experience. After the code blue yesterday a few things have happened...we initially got somewhat misinformation about her neurological brain functioning--it is not completely determined as "normal functioning."
So lets clarify where we're at...her kidney function is not completely impaired but not working to its full extent...the kidneys are a bit in shock, the CO2 in her system has skyrocketed (meaning her lung function and gas exchange between Oxygen and CO2 is not working well) and, while the EEG yesterday did show brain activity, it was not fully normal brain activity, meaning they are concerned there might be some sort of brain damage--whether the damage is reversible, to what extent is is damaged, etc. we will not know for some time. Since, she has high CO2, and BUN (kidney toxins) which also impair brain activity they do not know exactly what is causing what and to what extent the oxygen deprivation from the code blue has affected her brain.
SO...we are shocked, scared, frustrated, concerned, etc. and taking things day by day/hour by hour. The plan for today is, rotation and light CPT/suctioning to help move mucus in her lungs and improve CO2-Oxygen gas exchange, Dialysis is ordered to clear toxins and remove fluids from her body (she has too much fluid impacting her lung function), and the neuro team will be continuing to monitor her and will repeat the EEG later in the week. We don't have a lot of answers as to what's happened and why but we do know a few things. Emily is strong and feisty. Her strength, gumption and strong will have always proved to be her greatest asset. We know that miracles have happened in her and will continue to happen as we all pray and continue to surround her with love. We hope, as always, that she will continue to defy all expectations and come back to us in full strength and we ask that you all continue to pray as often as possible for her (we are continuing to pray on the 14 of every hour).
Much love and hugs to everyone,
Julia
p.s. we are currently cycling through a playlist of great Hawaiian tunes, worship music, etc. that everyone has sent Emily over the last few months, hoping Emily enjoys the fun tunes :)
So lets clarify where we're at...her kidney function is not completely impaired but not working to its full extent...the kidneys are a bit in shock, the CO2 in her system has skyrocketed (meaning her lung function and gas exchange between Oxygen and CO2 is not working well) and, while the EEG yesterday did show brain activity, it was not fully normal brain activity, meaning they are concerned there might be some sort of brain damage--whether the damage is reversible, to what extent is is damaged, etc. we will not know for some time. Since, she has high CO2, and BUN (kidney toxins) which also impair brain activity they do not know exactly what is causing what and to what extent the oxygen deprivation from the code blue has affected her brain.
SO...we are shocked, scared, frustrated, concerned, etc. and taking things day by day/hour by hour. The plan for today is, rotation and light CPT/suctioning to help move mucus in her lungs and improve CO2-Oxygen gas exchange, Dialysis is ordered to clear toxins and remove fluids from her body (she has too much fluid impacting her lung function), and the neuro team will be continuing to monitor her and will repeat the EEG later in the week. We don't have a lot of answers as to what's happened and why but we do know a few things. Emily is strong and feisty. Her strength, gumption and strong will have always proved to be her greatest asset. We know that miracles have happened in her and will continue to happen as we all pray and continue to surround her with love. We hope, as always, that she will continue to defy all expectations and come back to us in full strength and we ask that you all continue to pray as often as possible for her (we are continuing to pray on the 14 of every hour).
Much love and hugs to everyone,
Julia
p.s. we are currently cycling through a playlist of great Hawaiian tunes, worship music, etc. that everyone has sent Emily over the last few months, hoping Emily enjoys the fun tunes :)
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