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Tuesday, March 6, 2012

I am going to bean Auntie!!!

Laddies and Lassies,

I am please to announce that there will be another member in our family as whole.  My eldest sister Erin is going to make me a beautiful little baby to play with, hold and love more than I could possibly imagine.

This is my post.

Thank you


Thursday, February 16, 2012

Happy Anniversary to....

ME!!!


Today is February 16th, 2012, and three years ago today I was blessed with the only gift that is completely selfless... and that is the gift of organ donation.  Not only did I receive these beautiful Lungs that allow me to be here, but it also reminds me that someone had to lose their life, a loved one or a partner, in order for me to be grateful on this day.


Every year at this time, I get to celebrate another year full of life, with the people who mean the most to me.  My friends and family.  I can tell any stranger my story, I can tell you my story.  But you will only hear about it from my point of view.  The best experiences in life are the ones you suffer through.  I am not going to lie when I tell you I was scared, because I wasn't.  I didn't panic, I didn't cry all I can say is that this was the most amazing day of my life.

I have been given the gift of life again.  a gift that not many people get to experience in their lifetime.  I get to live life twice.  I cannot undo what I have done in the past, but I can better my future for all those involved.  Today I can say that I can do that, I can do this.  Three years ago, I wasn't coming home.  The love i have for my second unknown family, is about as intense as the love I feel for my own flesh and blood.

Their child, spouse, or partner is inside me, living on through me, and breathing to keep me alive.  These lungs are a part of me, a part of them a part of a future that I almost never had.  Last year I wrote to my donor, this year I did not.  Does that make me a bad person, that I am not regarding my donor family for everything they have done for me to be here?  I don't think so.  I have reached out to them, but i cannot force them to talk to me or write to me.  It's probably still painful.

Would you want to talk to the person who is taking the lungs of your loved one?  Who was taken from you suddenly and without notice?  No, you probably wouldn't, so why would I expect them to do the same.  Life is like a crystal glass, if you bang it around to much it will break.  Slow down, you move to fast, you've got to make the moment last.  My lungs are my life now, everything I do is for them, keep them safe, medicated and full of hot air, oh wait that's my head... no that's the lungs.


I am strong because;
Someone gave their life to save mine.  
Someone made a choice to let me live.
Someone thought of someone else,
Someone thought of me.

I am Strong because;
I have a loving family,
I have loving friends,
I have air in my lungs,
I have life in my soul.

I am strong;
Because I said so!

I am strong;
Because I am me!


What is this life for....

As I was sitting at my parents house tonight, I have come to the realization thaat I am one lucky girl. Ok so I have always known I was lucky but now I know how really lucky I am. As my third anniversary comes creeping up on my, in four days, I realize that there is more to life than I let on. I have been introduced to some wonderful women, with whom I don't seem to talk to as much as I think I should be. My wonderful hubby, Derk, introduces me too many of his friends wives or girlfriends and I don't think twice to call them to do something with me.

 What is wrong with me.

 Maybe it's because I am so used to doing things on my own that I don't even think to call them. Not only them but the girls I have met at work. Maybe it is just me, but I think I suffer from severe anti social behavior. I will socialize at wire, but I win't think twice to call anyone outside of work. Or maybe it's because I am too tired after work, and all I want to do is sit on my couch watch a movie or Criminal Minds. It's not that I don't like these people I think these women are wonderful, but they all have something in their lives that I do not have and that's children. How do you socialize with people who have children and you don't? Take for example my bestest friend Ashley, she lived across the gall from me, her kids grew up with me Round so I was familiar, my new driends have kids, they don't know me from Adam.

 There is a kin ship with people who have kids, they can compare lives, but who's life sod I have to compare with? Even my CF friends are having babies... You heard that right, cf'ers can have babies, and we make pretty sexy pregnant mommies too. My life is exactly what I want it to be, but it has been brought to my attention that I. Need to get and do stuff for myself. I agree with that. I have a new job, and I have my own money coming in, so why don't I do something for myself?? I guess I am the kind of Weston who doesn't like to make plans with people, because any time I make plans with people they all back out, or something else came up.

 Maybe I am the type of person people actually like around. Am I too spunky, hyper whatever you want to call it, or am I just really boring to be around. I am not up with current affairs, I hate politics and the way the government is run, I hate that I would have had to pay for my medication but it took a woman to stand up to men to tell them that we as. Cf patients cannot afford to pay hundreds even thousand sod dollars to stay alive.

Maybe I am sick. I don't know what I am. I live for today, not knowing what will happen tomorrow. No one knows what will happen, so I am not going down that road. I don't have complaints that I know of, although my husband would probably say otherwise. I love my job, my family and my close friends with nwhom I consider sisters, maybe I don't want the drama that having many sets of friends it brings.

 I am not the only owe with a telephone, I may bethe only one without a cell phone, but my home line rights the same. On that note I am going to talk is down a little bit, and enjoy what i have left of my weekend. So, sleep tight don't let the bed bugs bite, and enjoy the Grammy's.

Chers Ali

Thursday, January 12, 2012

Cleaning House

So today I decided that I was going to clean out my facebook account.  you know get rid of people you don't talk to, who don't comment on anything, or those who I just don't want associated to me in any way.  This is how I cleans myself.  Get rid of the negativity and useless meaning in my life.

Time to rejuvenate my life.  New hair, New job new Friends and a new attitude about myself.  I have been reconnecting wit my childhood self, remembering all the wonderful things I did as a child, and thought that would make me feel better.  And boy was I right.  I have made some drastic choices in my short life, that I thought I needed to make some more.

I have lost a friend again this day.  I want to send out my love to the Martinez family, and to Cinthia's close friend Kate "Ducky", please know that i am here and love you very much.  CF sucks, and it always will.  But good can come out of this mess of a situation.  a CURE at some point.




I have started a new job in the beginning of December, and tomorrow I have officially been put on the floor for actual work and not training.  Am I ready, I don't know yet, ask me tomorrow.

Well this is the minor update to you all, and I want to thank you for sharing in my sadness and frustration and cleanliness,  I couldn't do it without you.  Haha

Love to the Msrtinez family, and all the world.

Ali

Thursday, November 24, 2011

It's not my Thanksgiving, but i am thankful

So today is Thanksgiving in our sister country on The US of A and what am I thankful for, well let me tell you.

I have written a little something for my Donor and his/her family and it goes like this this, while it moves life Jagger...

Okay, so I cannot seem to find this wonderful peice of writing that I has so meticulously placed in a safe place that I, myself cannot find it.  So much for super sleuthing.

Today on our news channel CTV Ottawa, which covers all of Eastern Ontario and part of Western Quebec, my friends Mandi and Ronnie Sharpe made it to the new channel.  They are all the way out in Arizona somewhere and what should my brown eyes see on our news station, but Mandi holding up her pregnancy test.  Yep you heard it hear follks, the Sharpe's have made their way into Canada.  WOOHOO.  If you are on my facebook you can see the whole video there.

On to why I am thankful this american Thanksgiving day.

1) my donor family
2) My family all of them
3) My American CF family, actually all my CF family
4) My faith in God and his creation in me and my donor family
5) You, yep you.  You are here today reeading my blog and knowing that you are here reeading this sure makes me feel alive and loved.

I cannot believe that it will be three years soon that i have been blessed with a new set of lungs.  I might also be blessed with a new job, that will finally allow me to save and visit my friends around the world.  First place to go is Idaho for my good friend Meg's Baby shower in January, then hopefull to Arizona to see Mandi, Ronnie and Makenna, then to Virginia to see Cara and Patrick and maybe have a tour of the Air Force base in Norfolk where "P" works.  TOP GUN I might ass.  Cara's got herself her own little Maverick, although taller and better looking.

My need to visit with other CF'ers is something I have always dreamed about.  We are not suppposed to be in contact with each other, but i don't know if it's the same after transplant.  I will double check with my doctor and see what they say about the whole thing.  I know none opf them have Cepacia or MRSA so maybe it is possible.  When I think of Meg having  a little one, I think about Eva, she woud be so proud of Meg and the tough road she has come down, only to welcome a little man into the world in 2012.

I love babies, you show me a baby and I go nuts.  I decided not to have children as my body had been through enough.  There are just some things I wasn't meant to do.  Give me any baby and I can put them to sleep, I have this thing, this knack I guess you could say.  I have been called the Baby Whisperer!  Give me your restless baby, and i can calm them down, no problem.  It's a thing, I can't explain it. *laughing at myself*

Well there's not much more to say tonight, I will be back tomorrow with some pretty cool news or not.  Depends what happens.

Much love, Happy Thanksgiving to my American Cyster and Fibros.

LOVE LOVE LOVE
Ali



Thursday, October 27, 2011

Why Me?

This is a sad blog today.  A good friend of mine in the UK has passed away.  Rachael and I met online through many friends.  Things are starting to make me wonder why i am here and Rachael didn't make it.  I am attaching the link of her memorial tribute by the BBC in the UK. I have also Dedicated my profile picture to her.


This could be any of us, but Rachael :"Rachy" was someone special to  me.  Those that knew her and followed her know what she went through.  I am losing so many friend cause people don't sign their organ donation cards.  Is it worth that much that you have to take you organs with you, to not be used by anyone else.


Try saving up to 8 lives with major organs and hundred more with tissue, blood and and more.


http://www.bbc.co.uk/news/uk-england-manchester-15486492


Above is the link.  Please read the article, watch the video and think of all the wonderful things you can do,  and the wonderful children and adults you can save.


If you haven't thought about organ donation, please talk to your family.  Make sure your swishes are known with your friends and family.  There is too much sadness in life, if you could save someone when you decide to leave this world, or rather it's your time to leave this world, wouldn't you want to live on through another person.  Rachael can be your daughter, niece, Aunt or granddaughter, why would you chance loosing them again.


Please talk about Organ donation, it saved my life and can save yours when you need it.


Love you Rachael, always and forever!


Ali

Thursday, August 25, 2011

The Good Life,

This video says it all.  Need I say more... Definetly not.

Enjoy!


Love you all

Thank you all

That is all.

Ali