It is an honor that you are here, Thank you!

Friday, February 25, 2011

My 100th Post!!!!

Ladies & Gentlemen
Madames & Monsieur's

Let me introduce you to BLOG # 100.
Today I want to discuss the reason I am alive today, and the reasons I fight for Cystic Fibrosis.

REASON #1 - My Donor
Today i am able to wake up, take deep breaths and thank God for allowing my this beautiful vision I see everyday.  It may be cold, and it may get wet, but it's snow.  Without my donor, I wouldn't looking out my window and the white blanket of snow that covers the lawn of my apartment building.  The flashing blue light of the plow rushes by and crates a wave of snow over the sides of the road.  Without my donor and their family, I wouldn't be sitting here typing this from my home computer.  I am forever in debt to the harsh decision they had to make that faithful day in February 2009.  Not only was it family day in Ontario for the first time, but i amble to share my family with my donor family.

Freedom of Flight, Breathing easy & flying high


WHY I FIGHT FOR CF - Friends & Family

I don't fight Cf just for me anymore, I never really have.  I have been fighting this battle for everyone I know who has CF, who has conquered the transplant and for those who are in the phase of becoming familiar with the transplant process.  Cystic fibrosis, is who i am, it's what I stand for.  My friends and Family are the reason I fight so hard.  If it weren't for them, I wouldn't be who I am today, they mold me into this great person that i have become.  

When I get the chance to express my emotions or feeling for my Fibros and Cysters, I like to tell them it's not a hindrance to have CF, it's a blessing, what you make of it, is who you are.  Cystic Fibrosis has made me strong, positive and knowledgeable with the illness i have come to call family.  If a little girl i know can fight Leukemia at age 2 and three I think at age 31 I can fight just as hard.  If only the had Make a Wish for adults, that would be awesome.  I would want Box sears at a HABS game playing the leafs, with a pass to visit with both teams before or after the game.  Drink would be on the house, I would invite my family a closest friends.  That has got to be a bit cheaper then a trip for 4 to Disney right?

But i do fight everyday I fight.  Today i have started an IV for Solumedrole again, that same dosage that I was given in November when I had Grade 2 rejection.  I don't have GR2, but my PFT's are low, and that concerns them a little bit.  So I fight, I fight so I can keep seeing the people that mean the world to me, the ones who look up to me, who call me Yaya, and Aunt Alison.  My family needs me, to be strong, i need them to be strong, so we are all strong together no matter what happens.

My passion for a cure drives me to fight harder.  When i see my friends who have gone through transplant like Eva, Ashley, Sean who went in this morning, Amanda, Tim, and maybe Marc soon.  I want them to see, through me, that it can be done.  Amanda and Tim where there when I needed them, and I thank them in my prayers every night.  Thank you guys so much for your help when i went through my TX, it made it easier to see what's around the corner. I can only hope that my experience will help others who have to go through the transplant process.

So in the meantime, i can hope that you will keep praying for me and all of us who suffer and live with CF on a daily basis.  CF isn't easy, it never will be  until a cure is found.  Help fight the fight of CF, and make your donation today.  You never know who you will be helping, it may even be one of your own children one day.

Much love and respect and prayers to you all
Ali

Great Strides 2011 --> this is from last year, but the point is just the same!

Thanks
Ali


Tuesday, February 15, 2011

Anniversaries & More

Well, it's bee too long since I have updates this.

So I hope to be vigilant in this, and expressing my emotions an thoughts with every turn I make.

It was a year aog on February 12th, that the Vancouver Winter olympics started and the Olympic Family lost a friend on the very first day.  To The Georgian Luger, Nodar Kumaritashvili we salut you!

Nodar Kumaritashvili


It was an experience, volunteering in Vancouver, that i will in no certain future forget.  The friends I made, the people I met, and the amount of fun we had.  I will cherish those memories forever.



*** OTHER NEWS ***

Just went to Toronto for my 2year assessment, you guessed it, it has already been 2 years.  Well, two years tomorrow that is.  I cannot believe it.  Since my Grade 2 rejection episode I have been waiting and hoping for the news that is has all be cleared, and thank the Grand Master up above, it has.

I cannot believe that someone I don't know is now a part of me, and who I am.  I admit, I have a short memory now, and tend to forget things, but I would rather that, then to have the latter.  Which we will not discuss here now or ever.

So tomorrow I have planned a 2 year assessment gathering, to thank all my freinds and family for their well wishes and support, it is something less than a miracle that I can do this and feel confident that I will not cry.  Ok, so that's not entirely true, because i am a blubbering boob when it comes to expressing my gratitiude to people.

So, my 2 year assessment blood work shows that I have great blood, everything is where it should be.  But my bloodpressure is high 167/103 and I have a fast heart rate and high cholesterol.  Lucky me, more meds.  I am not lloking forward to the reaction or side effects of these new meds.

No results from my Bronch yet, hopefully today and when that time comes, you will be one of the first people to know.

*** SOMETHING COOL ***

My buddy Ronnie and his wife Mandi are in the process of trying for a baby.  Ronnie has CF, and they had to do IVF in order to use "Ronnie's" specimen.  It's a great stroy, check it out at "Run Sick Boy Run".  Ronnie and Mandi we are all praying and sending you good vibes, Baby vibes.  Love you guys.


Ronnie & Mandi
Well this is all for now.

See you NEXT TIME!!
Ali

P.S.  Sending love to my freind Eva, who passed away March 27th.  Love you Eva!


Eva Markvoort