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Tuesday, January 11, 2011

So much to say... so little time to say it in...

Well time for some updates...

On December 10th, I had my port removed.  It was a painful process.  It isn't supposed to be, at all... but like always I have to be different.

Because I had Fibrin tissue on the end of my catheter that my port had, it was time to remove it.  none of knew that I also had Scar tissue built up around the catheter.  Yeah tell me about it.  So as the Doctor is having a difficult tie cutting the PORT from my body, due to scar tissue build up in the holes where the suture the port in, had grown all inside.  So as he's snipping away at the scar tissue there, he didn't know that the catheter would prove to be a hassle.

He had cut the tubing from the port to access it better and as he slowly tugged on the line,it wasn't moving.  But it was very painful.  I could feel the pain in my neck, my back and where the scar tissue had built up.  not pleasant. My Dr actually has to give me an IV of relaxants and pain killers to get it out.

One it came out, I had the privilege of seeing exactly what was causing the problem.  That little bastard thought he wasn't going anywhere, he was happy and content in his warm home.  Don't blame him in the least, ha ha.  It was such a rare occurrence that my Dr. Wanted to keep it to study it some more, and find out how it happened. 

He said "I have never seen this before, can I keep it?  I want to do a study on it" 

How can I say no to that.  I will once again be a part of medical science.  WOOHOO

I can still feel the scar tissue where the port had been.  It's so surreal, but it happened.  The just re cut the scar from the when they put it in, and it barely shows.  Kind of like my transplant scar, that hardly shows also.

I know i haven't been very good at updating this blog. BUT this year things will be a little different.

I went last week, the 4th of January, for a follow-up Bronch to see ow the grade 2 rejection is fairing out. I still have not hear anything, it's only been a week.  I am anxious as I would love to know what is going on inside my chest.  I don't feel sick, I don't have anything to worry about.  NO NEWS S GOOD NEWS, unless you are on the waiting list.

Well, that's all I have right now, I'll let you all know when I know about the Bronch results.

Cheers and love
Ali